Although children with ADHD and their
families confront daily challenges across many different tasks and
circumstances, even a child's most challenging behaviors tend to wax
and wane. And, even though many parents of children with ADHD can
readily identify specific high-risk "triggers" for problematic
behavior, there has been little research designed to identify specific
situational or temporal contexts in which the behavioral symptoms of
ADHD are most likely to be exacerbated. This is a limitation in
the literature, as documenting these "triggering" circumstances could
help to better identify important intervention targets.
To a certain extent, efforts to identify particularly difficult
contexts for children with ADHD at school have been conducted.
Situations that are particularly challenging for many children with
ADHD have been found to be those in which task difficulty is high,
ambient noise levels are high, peer cooperation is required, teachers
are not readily available, and children are expected to modulate their
behaviors in response to shifting circumstances or social
demands. These situations have been identified through the use of
classroom observers who are able to code the behavior of children with
and without ADHD in different circumstances across the school day.
Until recently, obtaining a similar understanding of how the problems
of children with ADHD and their families wax and wane at home has not
been possible, as placing observers in the homes of many families is
not a feasible research task. Recently, however, the advent of
Personal Digital Assistants (e.g., PDAs such as Palm Pilots) has
enabled researchers to obtain a more detailed and fine-grained view of
how children with ADHD and their parents experience their day-to-day
lives.
The manner in which PDAs are used to learn about individuals' daily
experience is really quite clever. The devices are programmed to
beep at random intervals throughout the day, and study participants are
trained to complete an electronic diary record of their activities,
mood, and context each time they are prompted by a beep. This
enables researchers to obtain a previously unavailable record of the
daily experiences of children with and without ADHD and their families,
and how this may differ from how children without ADHD and their
families experience their daily lives.
In a prior study using this technology that was summarized in a
recent issue of Attention Research Update
it was found that children with ADHD - even though their symptoms were
reportedly being managed well by medication - displayed higher rates of
symptomatic behaviors, including restlessness, excessive talk and
loudness, impatience, and difficulty concentrating. Mothers of children
with ADHD experienced more anger when with their children, and were
also more likely to report feeling ineffective as a parent and that
their child was limiting their activities.
In a follow up to this intriguing study that was published recently in
the
Journal of the American Academy
of Child and Adolescent Psychiatry (Whalen et al 2006. An
electronic diary study of contextual triggers and ADHD: Get ready, get
set, get mad.
JAACAP, 45,
166-174) the authors dug deeper into their data to learn how particular
contexts may be particularly challenging for children with ADHD and
their moms. The context they were most interested in is one
aspect of daily living that has surfaced repeatedly in anecdotal
reports as especially challenging, i.e., "getting ready", which the
authors define as preparing for an upcoming activity or making the
transition from one task to the next.
-
Participants
-
Participants were 27 children with ADHD (average age 10.5 years, 18
boys, 9 girls) and their moms as well as 25 children without ADHD
(average age 10.5 years, 15 boys, 10 girls) and their moms.
Unfortunately, a sufficient number of fathers could not be recruited to
participate, which the authors recognize as a limitation of their study.
All children in the ADHD group were being treated with a long acting
stimulant - either Concerta or Adderall XR - at the time of the study
and parents reported that the response to medication had been
positive. Children in the comparison group had no known learning
or behavioral problems. Because the authors were interested in
examining mother-child relationship issues, enrollment was limited to
mother-child dyads together for at least 4 hours each day.
To learn about participants' day to day experience, electronic diary
monitoring using Personal Digital Assistants - PDAs - was scheduled
across 7 consecutive days during nonschool hours. The PDAs were
programmed to beep at random intervals approximately every 30 minutes
to signal that it was time to complete a diary checklist. Both
mothers and children had their own PDA, which were programmed to beep
at different times, and each completed their own electronic
diary. The PDAs were programmed to beep when mothers and children
were likely to be together - before school, after school, and on
weekends. Before starting in the study, parents were interviewed
about upcoming activities for the week so that the PDAs could be
programmed to avoid beeping during times that would be particularly
disruptive.
The diary items were selected to "...tap contexts, behaviors, and moods
that are relevant to the daily lives of parents and school age
children, to capture the quality of their interactions, and to include
dimensions that often prove problematic for children with ADHD.
Each time the PDA beeped, participants used the PDA to identify their
location, social context, i.e., by themselves, with each other, with
peers, and their current activity. Then, mother and child rated
the child's symptomatic behaviors (e.g., impatient, restless), and
moods (.e.g., angry, good mood). Mothers also rated their own
moods. Each also rated the difficulty of the activity they were
currently engaged in and evaluated their ability to do it
successfully. These ratings were all made by checking boxes that
reflected different options for each question, and could thus be
completed quickly and easily. Mothers and children were each paid $100
for successfully completing the study.
Despite the frequent recording demands, moms and children did a good
job of completing the diary entries. Mothers received an average
of 91 signals to complete a diary entry during the 7-day period while
children received an average of 95 signals. Completion rates were
approximately 90% for mothers and children, and did not differ between
the ADHD and comparison group. Thus, even though some children in
the study were as young as 8, the use of a PDA to learn about
children's ongoing experience appears to be a very viable research
method.
Because moms and children recorded the current activity/context each
time they were beeped, the researchers could later examine whether
consistent differences in behavior, mood, and quality of interaction
emerged across different contexts. As noted above, they were
particulalry interested in how the experience of mothers and children
during "getting ready" times compared to other contexts in which they
interacted, e.g., meals, homework chores, watching tv, etc.
Seventy-five percent of these "getting ready" activities involved
getting children ready to go to school in the mornings, which may have
been before children's medication had reached peak effectiveness.
-
Results
-
Group differences were apparent in moms' reports of their children's
behavior and moods while getting ready. Specifically, relative to
mothers of comparison children, mothers of children with ADHD reported
higher rates of impatience, anger or frustration, and sadness or
discouragement in their children when having to "get ready".
Their reports also revealed that children with ADHD were less likely
during these times than their peers to be concentrating or in a good
mood, or more likely to be talking too much and too loudly.
In terms of moms' own experience during times of getting their child
ready, mothers of children with ADHD were more than 7 times more likely
than comparison moms to report feeling angry, and did so on over 26% of
diary entries completed during a "getting ready" activity.
Interestingly, during other types of activities, moms of children with
ADHD were not more likely than other moms to report feelings of
anger. For example, during activities besides getting ready, the
reported rates of anger/frustration were similar for moms in both
groups, e.g., 12.9% of the time for moms of children with ADHD vs.
11.8% of the time for other moms.
The quality of mother-child interaction during "getting ready" times
was also characterized by significant differences. While getting
their children ready, moms of children with ADHD reported 5 times as
likely to report disagreements and the frequency of disagreements was
much higher during getting ready times than during other
activities. Consistent with their mothers' report, children with
ADHD were more than 4 times more likely than peers to report
disagreeing or arguing with their moms while getting ready. Although
they were also more likely to report arguing during other activities,
the difference was most pronounced during the getting ready context.
In addition to the differences between groups summarized above, it is
also interesting to note differences within groups that were evident
during "getting ready" vs. other activities. For comparison moms,
there were essentially no differences in the mood they reported during
"getting ready" times relative to other activities. Thus,
regardless of whether they were getting their child ready for school,
or engaged in various other activities, they reported experiencing
anger, stress, sadness, and happiness at similar rates.
For moms of children with ADHD, the situation was quite
different. Thus, even though other activities included such
typically challenging ones as getting homework and chores done, during
getting ready times they were still significantly more likely to be
angry (26.9% of the time when getting ready vs. 12.9% of the time
during other activities), and stressed (44.7% vs. 22.4%), and less
likely to be in a good mood (46.5% vs. 70.4%). As noted above, they
were also more likely to report being in an active disgreement/argument
with their child.
Reports provided by the children themselves also indicated that
negative moods were more likely to be experienced during getting ready
times than during other times. Interestingly, however, this was
true for both children with ADHD as well as for comparison children.
-
Summary and
Implications -
Results from this study document that getting ready activities pose
special challenges for children with ADHD and their families.
During these times, their mothers are far more likely than other
mothers to feel angry and stressed, less likely to be in a good mood,
and more likely to be engaged with their child in an active
argument/disagreement. Even though parenting a child with ADHD
can present challenges in a wide variety of contexts, it appeared the
context of "getting ready" is one where mothers are most likely to
experience difficulty.
In interpreting these findings, several things are important to
consider. First, it should be kept in mind that the "other
activities" category included not only leisure times such as games or
watching tv, but also notoriously difficult circumstances such as
homework and chores. The fact that getting ready times were still
more difficult more moms of children with ADHD suggests that it may be
the sense of time urgency that characterizes these times that may
create special difficulty.
It is also possible that because getting ready for school constituted
about 75% of getting ready activities in the study, and this obviously
occurs in the morning, children's medication may not have yet reached
peak effectiveness. Thus, it would be interesting to know whether
this may have contributed to the special challenges posed by getting
ready.
Even if this were the case, however, it is well known that stimulant
treatment frequently falls far short of normalizing behavior and that
medication effectiveness can also wax and wane during the day. Thus,
the important point is that "...even when children with ADHD receive a
standard regimen of stimulant pharmacotherapy, situational and temporal
factors play a critical role in their social adjustment and family
harmony."
The value of this interesting work is that it provides new information
on the daily lived experience of children with ADHD and their families,
and clearly documents that the challenges experienced by moms of
children with ADHD are tied to particular tasks during the course of a
typical day. One implication of these findings suggested by the
authors is that as is often done in the medical treatment of asthma,
parents and children could be taught to recognize their own situational
triggers, and learn specific ways to anticipate these triggers and take
preventive action.
Thus, rather than providing a set of parenting strategies to be
employed across a range of circumstances, families would work together
to hone in on those particularly challenging contexts, and develop
plans to short-circuit these problems from occurring. This, of
course, is something that experienced clinicians often already do, and
this study highlights the potential value of taking such a context
specific approach.